How To Document Your Child’s Progress
Documenting your child’s progress over the years will help you evaluate programs and treatments, as well as show you how far your child has come.
State standardized tests performed in schools don’t accurately measure our kids’ abilities, but there are many tests that psychologists, occupational, physical and speech therapists can run annually at school, or privately through your insurance. They are developmental-age appropriate, so they vary as your child gains skills. For example, there is a TONI-4 for people who are nonverbal versus a WISC – Wechsler Intelligence Scale for Children used for people who are verbal. More are adolescent and adult tests can be found here.
Autism-specific measurement tests that you can do at home for free
These are tests you can run at home to evaluate treatments or overall progress. The ATEC is something we recommend you do annually even if it’s the only test you do.
ATEC – Autism Treatment Evaluation Checklist http://www.autism.com/ind_atec
M-CHAT-R/F – Modified Checklist for Autism in Toddlers- Revised, with Follow-Up
Our Skills Checklist can help you see the developmental steps in learning skills http://www.tacanow.org/wp-content/uploads/2012/10/Skills-Checklist.pdf
There are skills tests that can be done at home (or by a behaviorist trained on the test) such as the VB-MAPP or ABLLS-R. These tests are meant to be run every 6-12 months and show where the gaps in knowledge are so you can teach to those gaps.
You can print out developmental milestone lists and write when your child achieved each one to show progress and skill gaps to be worked on.
29 Milestones for Speech and Hearing Development
Speech and Language Milestone Chart By: PRO-ED Inc.
March of Dimes Developmental Milestones
CDC’s Act Early, Learn the Signs
Video is a powerful tool
- Why take video? Few things are more powerful than before and after video. It is helpful to document your autism journey with video of the good and bad times.
- Who to share videos with? The most important person to share video with is your doctor. Video can help you better describe symptoms, behaviors, and issues in between and at your appointments. It is important not to share videos in a non-secure, public forum.
- How to store videos. Transfer videos to DVDs or media storage (like an external hard drive) cataloged with dates for easy referencing.
Forms to help you track progress
TACA has lots of free forms to help you track treatments, contacts, medical information, behaviors and much more at http://www.tacanow.org/family-resources/autism-form-library/
More on how to get and stay organized at http://www.tacanow.org/family-resources/getting-staying-organized/
Autism Journey Blueprints
Parent Mentor Program
Find a TACA Chapter near you
Email or Phone