Understanding the GFCFSF Diet for Children with Autism

May 25th, 2017

Understanding the GFCFSF Diet for Children with Autism

By Holly Bortfeld

The GFCFSF diet, known as the “Autism Diet” has been around for many years and has helped many people with autism spectrum disorders (ASD) improve their lives, health, and functioning. The following are my reasons to defend the diet.

The Diet Has Proof To Back It Up
Research by Dr. Harumi Jyonouchi shows that 91% of people with ASD who were put on a strict GFCFSF diet improved. Jyonouchi’s papers say that ASD children have an aberrant immune response to the dietary proteins found in gluten, casein, and soy. In summary, "63 of 72 who tried a GFCFSF diet reported improvements in GI symptoms and some autistic behaviors. Most important, this validation is based not on an opioid excess theory, but on an immune model."

This peer-reviewed research merely backs up what parents have been saying for more than 10 years. Countless parents report that the diet is dramatically beneficial for their child. The most common comment we hear from parents is that their child “came out of the fog” when they started the diet. Many parents report that their children began to talk or increased their speech with the diet as well. Although this is anecdotal evidence, the preponderance of is it massive and consistent, and deserves a trial by families.

While we would like to have more double-blind studies to back up the diet, the truth is that it’s a very hard thing to study because of the difficulties with ensuring 100% compliance in both groups outside a controlled environment (which most parents would not allow). The few recent studies that have been done were designed to fail, as they didn’t run for a full four-month trial period (most were run for just a few weeks), even though many parents report that four months is the turning point. Additionally, those trials still allowed soy and unlimited high-sugar foods.

Research on GSH And Autism by Dr. S. Jill James shows that 71% of people with ASD have an MTase block, so even if the person isn’t allergic or intolerant to gluten, casein, and soy, removing these foods will decrease the adenosine and clear the block. Basically, almost everyone with ASD should do the diet to increase glutathione and health.

MTase block

MTase block

Diet Improves Health
ASD children usually self-limit their diet to a handful of things – usually all gluten and casein, and many times light-colored foods only. The typical ASD child can be down to a menu of chicken nuggets, French fries or chips, bananas, milk, and yogurt. Parents report that their children “refuse all other foods” leading to poor nutrition. The sensory defensiveness that many ASD kids exhibit is vastly heightened and texture becomes a roadblock to healthy eating as well. Once children are on a healthy GFCFSF diet, however, they expand their food choices to include more healthy choices, thus improving their nutrition.

Diet Improves The Symptoms Of Autism
Common problems in ASD such as sleep issues, tantrums, challenging behaviors including self-injury, and lack of safety awareness are commonly reduced when the diet is implemented. Before the diet, my son, like most ASD children, rarely slept through the night. A child, not to mention parents, functioning on 2-3 hours of sleep chronically, sets everyone up for a cornucopia of dangers. Sleep deprivation is linked to immune system problems and increased behavioral issues. For parents, this can mean car accidents, missed work, and increased illness, all causing a cyclical problem in the home for everyone. Most parents report a reduction in behaviors, especially self-injury, elopement, dangerous climbing, recurrent ear infections, rashes, and other medical conditions once their children are on the diet. According to the Autism Research Institute’s Parent Ratings of Biomedical Interventions, diet is consistently in the top interventions for efficacy.

Diet Enhances Therapies
Before the diet, my son had a 1:1 in-home 40-hour-a-week program. The problem was that he didn’t seem to know they were there. Once we implemented the diet, it was as if he woke up and said, “Oh, you want me to do this? Sure, why didn’t you say so?” He was finally able to attend to the therapists at his in-home program and his in-clinic OT and speech therapists. Until that happened, I felt like we were wasting our money on the therapies. Our behaviorist, who had been working with ASD kids for 20 years at that point, had set out a “realistic” time table that a child at my son’s functioning level would take to accomplish the goals we set for him. Once the diet was on board, however, my son flew through the goals and we were rewriting new goals monthly instead of semi-annually, which is what all of the professionals normally did. After a few years of witnessing children who were on the diet for themselves, all of the autism specialists we visited no longer accepted patients who weren’t on the diet. Their reasoning was that if they only had a limited amount of time to see children, they would rather spend two years with a child who could progress four years worth of development, than with a child who would progress four months worth of development in the same time period.

Diet Can Negate The Need For Psychotropic Medications
We have heard hundreds, if not thousands, of parents over the last decade tell the same story: “the doctor/school/therapist suggested medication to control the behaviors, but we opted for diet and they stopped suggesting medication since my son has responded so well to a simple change of food!” While this is anecdotal, it is a proven issue when it comes to gluten-induced seizures. I have had many doctors and parents tell me about children who had seizures and the removal of gluten stopped them, thus making that child’s seizure medication unnecessary.

Maybe The Question We Should Be Asking When It Comes To Diet And Autism Is “Why Not?”
The most common reason parents give for avoiding the diet is that they want their kids to eat the same foods as their peers sitting next to them in the school cafeteria. The problem is that school food is typically poor quality, low nutrition, high fat, sugar- and corn-syrup-filled junk food that plays a part in our national obesity epidemic. As parents, I hope that we will strive for better, not just the same substandard food the public schools serve.
Another myth worth debunking is that the diet is too expensive. The diet is only as expensive as you make it. Any diet, even the traditional American wheat and milk-based diet, is expensive if you buy a lot of pre-made foods. Here is a great article on doing the diet on a budget and GFCFSF Diet on Food Stamps.


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9 Responses

  1. […] fear feeding my younger boys wheat and milk, terrified that these foods will trigger autism.  Read this to understand […]

  2. […] Diet research on GFCF alone showed 65% of ASD children improved, but research on GFCFSF (including soy) showed 91% improved. […]

  3. […] GFCFSF Diet (Gluten-, Casein-, Soy-free Diet) This is the oldest of the “autism diets”. The proteins in gluten, casein (dairy) and soy cause problems, including immune response and increased autism symptoms, so they are removed from the diet. This diet is based on treating a leaky gut where peptides cross the blood brain barrier. People with the MTase block, such as those with ASD, have a 91% positive reaction to this diet. […]

  4. […] for the things you may see your child doing before, during, and after diet change.  You can click here to go to the Talk About Curing Autism (TACA) website to see proof and results that come with […]

  5. […] of issues. Learn more about diets here. Know that most MAPS doctors consider dietary intervention a foundational treatment, and some will not see you as a patient unless you follow one of the diets (GFCFSF at a […]

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